NIH Office of Rare Diseases Research (ORDR)

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NIH Announces Expansion of Rare Diseases Clinical Research Network

Nineteen New and Returning Consortia to be Awarded $117 Million Read More...


Rare Diseases Information Talking Glossary of Genetics Rare Diseases and Related Terms NLM Gateway PubMed Office of Orphan Products Development, FDA More...	Patient Advocacy Groups Pediatric Undiagnosed Diseases survey DIRLINE Genetic Alliance National Organization for Rare Disorders (NORD) More...	Research & Clinical Trials NIH Research Portfolio Online Reporting Tool Expenditure & Results (RePORTER) ClinicalTrials.gov Cancer.gov: Clinical Trials Clinical Center Clinical Trials The Rare Diseases Clinical Research Network Bench-to-Bedside Awards Undiagnosed Diseases Program Therapeutics for Rare and Neglected Diseases Program More...
Genetic & Rare Diseases Information Center (GARD) Search GARD for Disease Information Contact a GARD Information Specialist (en español) Genetic and Rare Diseases Information Center Brochure (en español) The "About GARD" Card (en español) Information about Rare Cancers More...	ORDR Co-funded Scientific Conferences Rare Diseases II: Hearing and Sight Loss Development of a Multicenter International Collaborative Network for the Study of Human Helminth Co-infections Research Challenges in CNS Manifestations of Inborn Errors of Metabolism More...	Genetics Information & Services Collaboration, Education, and Test Translation (CETT) Program for Rare Genetic Diseases Online Mendelian Inheritance in Man (OMIM) Gene Tests Genetics Home Reference (GHR) CDC Laboratory Practice Evaluation and Genomics Branch (LPEGB) More...
Research Resources ARRA: ORDR Recovery Act Information Grants – Office of Extramural Research National Disease Research Interchange (NDRI), National Rare Disease Biospecimen Resource (NRDBR) NIH Office of Technology Transfer - Rare Diseases NIH Office of Technology Transfer - Neglected Diseases More...	Patient Travel & Lodging Angel Flight at NIH Mercy Medical Airlift Air Charity Network (ACN) The Children’s Inn at NIH Edmond J. Safra Family Lodge at NIH More...	Reports & Publications Biennial Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2006 Annual Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2005 ORDR Brochure More...
Rare Disease News Rare Cancers with High Mortality Workshop registration Now Open Inborn Errors of Metabolism Workshop Registration Open Advancing Rare Disease Research: The Intersection of Patient Registries, Biospecimen Repositories, and Clinical Data Workshop NIH Announces Expansion of Rare Diseases Clinical Research Network 2009 Flu Info More...	Recursos en Español GobiernoUSA.gov El Centro de Información sobre Enfermedades Genéticas y Raras Oficina Nacional de Genómica en Salud y Prevención de Enfermades de los Centros para el Control y Prevención de Enfermedades (en español) More...

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