ORDR coordinates the following collaborative research efforts
ORDR is part of the National Center for Advancing Translational Sciences (NCATS).
The goals of ORDR are to identify, stimulate, coordinate and support research to respond to the needs of patients who have any one of the approximately 6,800 rare diseases known today. Read more about ORDR.
- Bench-to-Bedside Awards
- The Rare Diseases Clinical Research Network
- Global Rare Diseases Patient Registry and Data Repository (GRDR)
- Rare Diseases Human Biospecimens/Biorepositories (RD-HuB)
- Undiagnosed Diseases Program
Funding opportunities from the NIH and other sources
Resources to aid in research efforts
Learn about research studies, clinical trials, and patient registries
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A collection of resources for the rare disease community
A collection of resources that provide information on genes, genomics, and genetic conditions
Learn about genetic testing and finding healthcare services
Organizations that can help you find support and assistance