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January 11-12, 2010 ● Doubletree Bethesda Hotel & Executive Meeting Center ● Bethesda, MD We have reached capacity for the Advancing Rare Disease Research: The Intersection of Patient Registries, Biospecimen Repositories, and Clinical Data Workshop Registration Management workshop to be held January 11-12, 2010 in Bethesda, Maryland, so registration is now closed. Registration may briefly re-open after January 4, 2010, depending on the number of registration cancellations we receive between now and then. In the meantime, the draft agenda will be periodically updated.Please send an email to mmcnamee@icfi.com if you would like to be added to the waitlist for the workshop. We will notify individuals on the waitlist by December 18 with an update on the status of their registration.If you would like to be involved in this project and take part in future activities of one of the working groups, (breakout sessions), that are listed on the agenda, please contact Yaffa Rubinstein at rubinsty@od.nih.gov.Thank you for your interest in this important workshop! |