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NEWS & EVENTS

The First Wiskott-Aldrich Syndrome Families and Investigators Conference

Friday, July 30, 2010 - Sunday, August 01, 2010
Hilton Chicago Indian Lakes Resort and Conference Center, Bloomingdale, Illinois

Conference goals were to (1) gather families affected by Wiskott-Aldrich syndrome (WAS) together in a nonmedical setting to share experiences with each other and present concerns to experts in immunology, BMT, and genetics; (2) review research achievements in WAS diagnosis, treatment (including BMT approaches and gene therapy), post-transplant outcomes (reconstitution and side effects of chemotherapy), and management of medical complications and family psychological issues; (3) develop and prioritize outstanding questions for future research; and (4) coordinate with planned efforts for a national WAS registry.

Contact:
Dr. Fabio Candotti, fabio@nhgri.nih.gov fabio@nhgri.nih.gov

Co-funding Institute(s):
National Human Genome Research Institute
Office of Rare Diseases Research

From the National Center for Advancing Translational Sciences

From the National Institutes of Health

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