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Optic atrophy 1 and deafness
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On this page
Organizations Supporting this Disease
Social Networking Websites
- The American Foundation for the Blind and also has a message board for parents and health care providers to post messages about children with various eye conditions. Click on the link above to view these message boards.
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.