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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Renpenning syndrome 1


Other Names for this Disease

  • Mental retardation, X-linked Renpenning type
  • Mental retardation, X-linked, syndromic 8
  • MRXS3
  • MRXS8
  • RENS1
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Social Networking Websites

  • DNAandU.org is a Web site and blog¬†that collects¬†firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

  • American Association on Intellectual and Developmental Disabilities
    444 North Capitol Street, NW
    Suite 846
    Washington, DC 20001-1512
    Toll-free: (800) 424-3688
    Telephone: (202) 387-1968
    Fax: (202) 387-2193
    Website: http://www.aaidd.org

  • Genetic Alliance
    4301 Connecticut Avenue NW
    Suite 404
    Washington, DC 20008-2369
    Telephone: 202-966-5557
    Fax: 202-966-8553
    E-mail: info@geneticalliance.org
    Website: http://www.geneticalliance.org/

  • National Organization for Rare Disorders (NORD)
    55 Kenosia Avenue
    PO Box 1968
    Danbury, CT 06813-1968
    Toll-free: 800-999-6673 (voicemail only)
    Telephone: 203-744-0100
    TTY: 203-797-9590
    Fax: 203-798-2291
    E-mail: orphan@rarediseases.org
    Website: http://www.rarediseases.org

  • The Society for Developmental and Behavioral Pediatrics
    6728 Old McLean Village Drive
    McLean, VA 22101
    Telephone: 703-556-9222
    E-mail: info@sdbp.org
    Website: http://www.sdbp.org/index.cfm

Other Names for this Disease
  • Mental retardation, X-linked Renpenning type
  • Mental retardation, X-linked, syndromic 8
  • MRXS3
  • MRXS8
  • RENS1
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.