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Diseases

Genetic and Rare Diseases Information Center (GARD)

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WHIM syndrome


Other Names for this Disease

  • Warts, Hypogammaglobulinemia, Infections, and Myelokathexis
  • WHIMS
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied WHIM syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • The Research Portfolio Online Reporting Tool (RePORT) provides access to reports, data, and analyses of research activities at the National Institutes of Health (NIH), including information on NIH expenditures and the results of NIH-supported research. Although these projects may not conduct studies on humans, you may want to contact the investigators to learn more. To search for studies, click on the link and enter the disease name in the "Terms Search" box. Then click "Submit Query".
  • The National Institutes of Allergy and Infectious Diseases (NIAID) at the National Institutes of Health (NIH) is conducting a study titled "A Phase I Study of Mozobil in the Treatment of Patients with WHIMS" (Protocol no. 09-I-0200). To learn more about the study, you can contact the person listed below.

    Nana Kwatemaa, RN, MSN
    Telephone: 301-451-7820
    Fax: 301-451-5482
    E-mail: nkwatemaa@nih.gov

Patient Registry

  • ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Research Resources (NCRR), a center of the National Institutes of Health (NIH), the primary Federal agency for conducting and supporting medical research. Click on the link to learn more about ResearchMatch.

General Clinical Trials & Research

  • NIH Clinical Trials and You is a website developed by the National Institutes of Health (NIH) to help people learn more about clinical trials, why they matter, and how to participate.
Other Names for this Disease
  • Warts, Hypogammaglobulinemia, Infections, and Myelokathexis
  • WHIMS
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.