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Genetic and Rare Diseases Information Center (GARD)

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Chiari malformation type 1


* Not a rare disease
Other Names for this Disease
  • Arnold Chiari malformation type I
  • Chiari malformation type I
  • Chiari type I malformation
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Your Question

My friends little boy is 3-years-old and has been diagnosed with Chiari malformation type 1. Could you tell me how it will affect his life? Is the outcome good or bad? He suffers from headaches at the moment.

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What is the prognosis for someone diagnosed with Chiari malformation type 1?

The prognosis for someone diagnosed with Chiari malformation type 1 is often unknown. Many people with this condition do not have any symptoms, and it is not possible to predict if symptoms will develop in the future.[1] Other affected individuals may experience dizziness, muscle weakness, numbness, vision problems, headache, or problems with balance and coordination.[1] In these individuals, it is not always known if symptoms will get worse over time. It is important for people with Chiari malformation type 1 to receive regular medical care so they can be monitored by a physician for any new symptoms.

There are some treatments that may help reduce or eliminate the symptoms of Chiari malformation type 1. Medications may ease certain symptoms, such as pain. Surgery is another treatment option, but it is typically reserved for people with severe symptoms. Many patients who have had surgery see a reduction in their symptoms and/or prolonged periods of relative stability.[1]

Last updated: 2/10/2010