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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Thiamine responsive megaloblastic anemia syndrome


Other Names for this Disease
  • Megaloblastic anemia thiamine-responsive with diabetes mellitus and sensorineural deafness
  • Rogers syndrome
  • Thiamine-responsive anemia syndrome
  • Thiamine-responsive myelodysplasia
  • TRMA
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations


Organizations Supporting this Disease

  • American Diabetes Association
    1701 North Beauregard Street
    Alexandria, VA 22311–1742
    Toll-free: 1–800–DIABETES (342–2383)
    Fax: 703–549–6995
    E-mail: AskADA@diabetes.org
    Website: http://www.diabetes.org

  • Anemia Institute for Research and Education
    151 Bloor Street West, Suite 600
    Toronto, Ontario, M5S 1S4
    Canada
    Telephone: 416-969-7431
    E-mail: info@anemiainstitute.org
    Website: http://www.anemiainstitute.org

  • European Network for Rare and Congenital Anaemias (ENERCA)
    University of Barcelona
    Red Cell Pathology Unit
    C/Villarroel, 170 · 08036
    Barcelona
    Spain
    Telephone: (34) 93 451 5950
    Fax: (34) 93 227 1764
    E-mail: enerca@enerca.org
    Website: http://www.enerca.org

  • National Association of the Deaf
    8630 Fenton Street Suite 820
    Silver Spring, MD 20910
    Telephone: 301-587-1788
    TTY: 301-587-1789
    Fax: 301-587-1791
    E-mail: NADinfo@nad.org
    Website: http://www.nad.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support