Other Names for this Disease
- Female adnexal tumor of probable Wolffian origin
- Wolffian adenoma
- Wolffian adnexal tumor
Your QuestionI've had a recurrence of a wolffian tumor. Is there a way I can talk to other women with this condition. Also, is there any research studies enrolling women with this tumor?
We have identified the following information that we hope you find helpful. If you still have questions, please contact us.
Questions on this page
The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
In addition, the following group may be able to provide you with additional information on wolffian tumor.
American Urologic Disease Foundation
1000 Corporate Boulevard
Linthicum, Maryland 21090
Telephone: (410) 689-3990
Fax: (410) 689-3998 (fax)
Toll free within the United States: (800) 828-7866
Web site: http://www.auafoundation.org/
You can also contact the Patient Recruitment and Public Liaison (PRPL) Office at the National Institutes of Health (NIH). We recommend calling the toll-free number listed below to speak with a specialist, who can help you determine if you are eligible for any clinical trials.
Patient Recruitment and Public Liaison Office (PRPL)
NIH Clinical Center
Bethesda, Maryland 20892-2655
Web site: http://clinicalcenter.nih.gov/
If you are interested in enrolling in a clinical trial, you can find helpful general information on clinical trials at the following ClinicalTrials.gov Web page.
A tutorial about clinical trials that can also help answer your questions can be found at the following link from the National Library of Medicine:
Resources on many charitable or special-fare flights to research and treatment sites and low-cost hospitality accommodations for outpatients and family members, as well as ambulance services, are listed on the Web site of the Office of Rare Diseases (ORD), part of the National Institutes of Health.