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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Wolffian tumor


Other Names for this Disease

  • FATWO
  • Female adnexal tumor of probable Wolffian origin
  • WAT
  • Wolffian adenoma
  • Wolffian adnexal tumor
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

I've had a recurrence of a wolffian tumor. Is there a way I can talk to other women with this condition. Also, is there any research studies enrolling women with this tumor?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What are wolffian tumors?

Wolffian tumors are rare tumors located anywhere along the length between the ovary and vagina in sites of remnant wolffian ducts. Wolffian ducts are structures in a developing embryo that get incorporated into the reproductive system in males and degenerate in females. Wolffian tumors are thought to have a low potential to become cancerous and tend to range from 0.8 to 25 centimeters in size. It is not clear what causes these rare tumors.[1]
Last updated: 7/11/2008

How can I find other women with wolffian tumor?

While we are not aware of a support group specifically for women with a wolffian tumor, you may find the following online networks to be helpful. You can register with these sites to search for other patients with a wolffian tumor and to allow other patients to find you.

The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.

RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.

In addition, the following group may be able to provide you with additional information on wolffian tumor.

American Urologic Disease Foundation
1000 Corporate Boulevard
Suite 410,
Linthicum, Maryland 21090
Telephone: (410) 689-3990
Fax: (410) 689-3998 (fax)
Toll free within the United States:  (800) 828-7866
Email: aua@auanet.org
Web site: http://www.auafoundation.org/
Last updated: 7/11/2008

How can I learn about research involving wolffian tumor?

The National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. No studies involving wolffian tumor are listed at this time, but check this site often for updates. To search for a study, use 'wolffian tumor' as your search term.

You can also contact the Patient Recruitment and Public Liaison (PRPL) Office at the National Institutes of Health (NIH). We recommend calling the toll-free number listed below to speak with a specialist, who can help you determine if you are eligible for any clinical trials.

Patient Recruitment and Public Liaison Office (PRPL)
NIH Clinical Center
Bethesda, Maryland 20892-2655
Toll-free: 800-411-1222
Fax: 301-480-9793
Email: prpl@mail.cc.nih.gov
Web site:  http://clinicalcenter.nih.gov/

If you are interested in enrolling in a clinical trial, you can find helpful general information on clinical trials at the following ClinicalTrials.gov Web page.
http://clinicaltrials.gov/ct2/info/understand

A tutorial about clinical trials that can also help answer your questions can be found at the following link from the National Library of Medicine:
http://www.nlm.nih.gov/medlineplus/tutorials/cancerclinicaltrials/htm/lesson.htm

Resources on many charitable or special-fare flights to research and treatment sites and low-cost hospitality accommodations for outpatients and family members, as well as ambulance services, are listed on the Web site of the Office of Rare Diseases (ORD), part of the National Institutes of Health.
http://rarediseases.info.nih.gov/Resources.aspx?PageID=8

Last updated: 7/11/2008

References
  • Ramirez PT, Wolf JK, Malpica A, Deavers MT, Liu J, Broaddus R. Wolffian duct tumors: case reports and review of the literature. Gynecol Oncol. 2002;
Other Names for this Disease
  • FATWO
  • Female adnexal tumor of probable Wolffian origin
  • WAT
  • Wolffian adenoma
  • Wolffian adnexal tumor
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.