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Genetic and Rare Diseases Information Center (GARD)

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Leber hereditary optic neuropathy with dystonia

Other Names for this Disease
  • Dystonia familial, with visual failure and striatal lucencies
  • LDYT
  • Leber optic atrophy and dystonia
  • Leber's hereditary optic neuropathy with dystonia
  • LHON and dystonia
More Names
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Organizations Supporting this Disease

  • Leber's Hereditary Optic Neuropathy Website

  • Mitochondria Research Society
    Keshav K. Singh, Ph.D.
    Professor of Oncology
    Editor-in-Chief, Mitochondrion
    Department of Cancer Genetics
    Roswell Park Cancer Institute
    BLSC Building, Room # 3-316
    Elm and Carlton Streets
    Buffalo, NY 14263
    Telephone: 716-907-4349
    Fax: 716-845-1047

  • United Mitochondrial Disease Foundation
    8085 Saltsburg Road, Suite 201
    Pittsburgh, PA 15239
    Toll-free: 888-317-8633
    Telephone: 412-793-8077
    Fax: 412-793-6477

Social Networking Websites

  • is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support