HTLV-1 associated myelopathy/tropical spastic paraparesis
Other Names for this Disease
- Human T-cell leukemia virus type 1 associated myelopathy/tropical spastic paraparesis
- Tropical spastic paraparesis (formerly)
The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015 - Wednesday, June 10, 2015
Location: NIH Natcher Conference Center, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
15th International Conference on Human Retrovirology: HTLV and Related Viruses, Sunday, June 05, 2011 - Wednesday, June 08, 2011
Location: Leuven, Belgium
Description: The objectives of the 15th Conference on Human Retrovirology: HTLV and Related Viruses in Leuven, Belgium, are to (1) provide a forum for the presentation of original research pertaining to HTLV-I, HTLV-II, and related human viruses; (2) promote interdisciplinary interaction between basic scientists, epidemiologists, and clinical researchers toward fostering bench-to-bedside research; (3) promote interaction between scientists in the developed and developing world and stimulate international collaboration; and (4) expose students and young scientists to the HTLV research arena and promote their research careers so that this new generation may contribute to the field.
VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.
Adaptive and Innate Immune Responses to Neglected Tropical Diseases, Sunday, January 10, 2010 - Monday, January 11, 2010
Location: San Diego Airport Hilton Hotel, San Diego, CA
Description: The goals of this workshop were to (1) obtain an update on recent developments in the fields of basic immunology, immune responses to neglected tropical disease (NTD)-causing agents, and pathogenic mechanisms of NTDs; (2) determine what are the knowledge gaps and under-emphasized research areas for certain diseases that may not be receiving particular emphasis and how to stimulate research in these areas; and (3) develop a prioritized future research agenda for these areas. Plans are to publish results in the form of a report that could serve as a guide for donors and sponsors to prepare RFAs and for scientists to refocus their research efforts.