Other Names for this Disease
- Anaphylactoid purpura
- Henoch Schonlein purpura
- Purpura, Schonlein-Henoch
- Vascular purpura
Your QuestionI was first diagnosed with Henoch-Schonlein purpura at age 10. The disease has been occurring more frequently and worsening over the past 10 years. It is my understanding that this condition is not as common in adults as it is in children. I am treated with steroids when needed, but I am trying to find out if there are any other effective treatments for this condition. Do you know of any treatment alternatives, preventions, or research studies that may be helpful? Have there been any genetic studies? Do I need to fear that my children will get this disease?
We have identified the following information that we hope you find helpful. If you still have questions, please contact us.
Questions on this page
The U.S. National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. Currently, 4 clinical trials are identified as enrolling individuals with Henoch-Schonlein purpura. To find these trials, click on the link above and use "Henoch-Schonlein purpura" as your search term. After you click on a study, review its "eligibility" criteria to determine its appropriateness. Use the study’s contact information to learn more. Check this site often for regular updates.
You can also contact the Patient Recruitment and Public Liaison (PRPL) Office at the National Institutes of Health (NIH). We recommend calling 1-800-411-1222 to speak with a specialist, who can help you determine if you are eligible for any clinical trials.
Patient Recruitment and Public Liaison Office
NIH Clinical Center
Bethesda, Maryland 20892-2655
Web site: http://clinicalcenter.nih.gov/
If you are interested in enrolling in a clinical trial, you can find helpful general information on clinical trials at the ClinicalTrials.gov Web page. Resources on many charitable or special-fare flights to research and treatment sites and low-cost hospitality accommodations for outpatients and family members, as well as ambulance services, are listed on the Web site of the Office of Rare Diseases Research (ORDR), part of the National Institutes of Health.
- Bossart P. Henoch-Schonlein Purpura in Emergency Medicine. Medscape Reference. March 2013; http://emedicine.medscape.com/article/780452-overview#a0199. Accessed 4/12/2013.
- Henoch-Schonlein Purpura. The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC). September 2012; http://kidney.niddk.nih.gov/kudiseases/pubs/HSP/. Accessed 4/12/2013.
- He X, Yu C, Zhao P, Ding Y, Liang X, Zhao Y, Yue X, Wu Y, Yin W. The genetics of Henoch-Schönlein purpura: a systematic review and meta-analysis. Rheumatology International. 2013; Jan 17:Epub ahead of print. http://www.ncbi.nlm.nih.gov/pubmed/23325094. Accessed 4/12/2013.