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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Omenn syndrome


Other Names for this Disease
  • Reticuloendotheliosis familial with eosinophilia
  • Severe combined immunodeficiency with hypereosinophilia
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Organizations


Organizations Supporting this Disease

  • Canadian Immunodeficiencies Patient Organization (CIPO)
    362 Concession Road 12
    RR #2
    Hastings Ontario K0L 1Y0
    Canada
    Telephone: 877-262-2476 (toll-free)
    Fax: 866-942-7651 (toll-free)
    E-mail: info@cipo.ca
    Website: http://cipo.ca

  • International Patient Organization for Patients with Primary Immunodeficiencies
    Firside Main Road
    Downderry
    Cornwall PL11 3LE
    United Kingdom
    Telephone: 44-01503-250-668
    E-mail: david@pia.org.uk
    Website: http://www.ipopi.org/

  • Jeffrey Modell Foundation/National Primary Immunodeficiency Resource Center
    747 Third Avenue
    New York, NY 10017
    Toll-free: 866-INFO-4-PI (1-866-463-6474)
    Telephone: 212-819-0200
    Fax: 212-764-4180
    E-mail: info@jmfworld.org
    Website: http://www.info4pi.org/

  • United States Immunodeficiency Network (USIDNET)
    Towson, MD 21204-4803
    Toll-free: 800-296-4433
    Fax: 410-321-9165
    E-mail: info@usidnet.org
    Website: http://www.usidnet.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support