International Patient Organization for Patients with Primary Immunodeficiencies
Firside Main Road
Cornwall PL11 3LE
Telephone: 44-01503-250-668 E-mail: email@example.com Website: http://www.ipopi.org/
Jeffrey Modell Foundation/National Primary Immunodeficiency Resource Center
747 Third Avenue
Toll-free: 866-INFO-4-PI (1-866-463-6474) Telephone: 212-819-0200 Fax: 212-764-4180 E-mail: firstname.lastname@example.org Website: http://www.info4pi.org/
DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.