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Johanson Blizzard syndrome
Other Names for this Disease
- Nasal alar hypoplasia, hypothyroidism, pancreatic achylia and congenital deafness
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On this page
Organizations Supporting this Disease
Social Networking Websites
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.
Organizations Providing General Support
Restricted Growth Association
P.O. Box 4744
Dorset, Intl DT2 9FA
Telephone: 01308 898445
Fax: 01308 898445