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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Von Hippel-Lindau disease


Other Names for this Disease
  • VHL
  • VHL syndrome
  • Von Hippel-Lindau disease
  • Von Hippel-Lindau syndrome
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Your Questions Answered


3 question(s) from the public on this disease have been answered. Submit a new question.
  • I am looking for information about Von-Hippel Lindau syndrome, including how it might be treated. Click here for answer

  • I have VHL and have cysts in both of my kidneys. I have been experiencing new symptoms, including hearing loss on the left side, constant ringing in the left ear, problems with balance, and trouble catching my breath. There are times that I get flushed and very hot, and then my blood pressure drops very low. I live in Maine and the doctors here don't know much about VHL. Are these symptoms serious? Click here for answer

  • Please send me information on Von Hippel Lindau disease. I have high blood pressure, severe headaches, dizziness, and quick to anger.  After reading information on the Internet, I believe my symptoms might be explainded by VHL disease. Click here for answer