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Genetic and Rare Diseases Information Center (GARD)

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Other Names for this Disease
  • Hair-pulling syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.


Organizations Supporting this Disease

  • Mental Health America
    2000 N. Beauregard Street, 6th Floor
    Alexandria, VA 22311
    Toll-free: 800-969-6642
    Telephone: 703-684-7722
    Fax: Fax:1-703-684-5968

  • National Alliance on Mental Illness (NAMI)
    3803 N. Fairfax Dr., Ste. 100
    Arlington, VA 22203
    Telephone: 703-524-7600
    Fax: 703-524-9094

  • Trichotillomania Learning Center
    207 McPherson Street, Suite H
    Santa Cruz, CA 95060-5863
    Telephone: 831-457-1004
    Fax: 831-426-4383

Social Networking Websites

  • is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support