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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Tangier disease


Other Names for this Disease

  • A-alphalipoprotein neuropathy
  • Alpha high density lipoprotein deficiency disease
  • Analphalipo-proteinemia
  • Cholesterol thesaurismosis
  • Familial high density lipoprotein deficiency disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Children Living with Inherited Metabolic Diseases (CLIMB)
    Climb Building
    176 Nantwich Road
    Crewe CW2 6BG
    United Kingdom
    Telephone: 0800 652 3181 (toll free)
    E-mail: info.svcs@climb.org.uk
    Website: http://www.climb.org.uk

  • National Tay-Sachs and Allied Diseases Association
    2001 Beacon Street
    Suite 204
    Brighton, MA 02135
    Toll-free: 800-90-NTSAD (906-8723)
    Telephone: 617-277-4463
    Fax: 617-277-0134
    E-mail: info@ntsad.org
    Website: http://www.ntsad.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • A-alphalipoprotein neuropathy
  • Alpha high density lipoprotein deficiency disease
  • Analphalipo-proteinemia
  • Cholesterol thesaurismosis
  • Familial high density lipoprotein deficiency disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.