Genetic and Rare Diseases Information Center (GARD)
Other Names for this Disease
Aortic arch syndrome
Young female arteritis
regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.
I have been diagnosed with Takayasu arteritis. It has changed my life in many ways and I am yet to accept this condition. It has been very difficult for me to deal with this diagnosis and I'm not sure who to talk to or who to get information from.
We have identified the following information that we hope you find helpful. If you still have questions, please
Are there any advocacy organizations for individuals and families with Takayasu arteritis?
Yes, additional information and supportive resources for individuals with Takayasu arteritis are available from the following organization:
Last updated: 11/1/2013
Where can I find additional resources to help me cope with Takayasu arteritis?
The Vasculitis Foundation maintains lists of
In addition, you may find it helpful to speak with a therapist. The American Psychological Association has a
Psychologist Locator that can help you find a practicing psychologist in your area.
Last updated: 11/3/2013
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