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Genetic and Rare Diseases Information Center (GARD)

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Susac syndrome

Other Names for this Disease
  • Retinocochleocerebral vasculopathy
  • SICRET (small infarction of cochlear, retinal, and encephalic tissue) syndrome
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Your Questions Answered

4 question(s) from the public on this disease have been answered. Submit a new question.
  • My girlfriend's physicians think that she may have Susac syndrome. Can you provide us with some more information about this disease, particularly how it is treated and what we might expect in terms of prognosis? Click here for answer

  • My daughter was just diagnosed with Susac syndrome. Can you provide me with information about it? Click here for answer

  • I would like to learn more about Susac Syndrome.  I believe that a family friend may have this condition. I would like to know what test or battery of tests needs to be performed in order to make a conclusive diagnosis of this syndrome or be able to rule it out.  I would also like to know what medical facility closest to Raleigh NC has diagnosed and treated this syndrome. Click here for answer

  • My sister-in-law was diagnosed with Susac syndrome last year.  She is currently receiving chemotherapy and IVIG treatments.  Are there any other forms of treatment available? Click here for answer