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Diseases

Genetic and Rare Diseases Information Center (GARD)

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SAPHO syndrome


Other Names for this Disease

  • Acquired hyperostosis syndrome
  • Synovitis acne pustulosis hyperostosis osteitis
  • Synovitis, Acne, Pustlosis, Hyperostosis, and Osteomyelitis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

Are there any specialists in the San Diego, CA, area for Sapho Syndrome? Where can I find information on recommended treatments? Any information would be helpful.

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What is SAPHO syndrome?

SAPHO syndrome involves any combination of: Synovitis (inflammation of the joints), Acne, Pustulosis (thick yellow blisters containing pus) often on the palms and soles, Hyperostosis (increase in bone substance) and Osteitis (inflammation of the bones). The cause of SAPHO syndrome is unknown and treatment is focused on managing symptoms.[1]
Last updated: 2/4/2014

How might SAPHO syndrome be treated?

There is no specific treatment plan for SAPHO syndrome. It can be a chronic condition but sometimes eventually heals on its own. Joint pain may be managed with nonsteroidal anti-inflammatory drugs and prescription vitamin A is used to treat the acne.

Other drugs that may be used include:

Last updated: 2/4/2014

How can I find a specialist for SAPHO syndrome?

Many individuals want to know about healthcare professionals or researchers who have knowledge of their conditions. When a condition is rare, it can be difficult to find someone who has seen many cases. Although there is no list of experts in rare diseases, GARD's How to Find a Disease Specialist fact sheet provides several ways to identify healthcare professionals who have experience with a particular condition. Click on the link to access this resource and learn more.

The American College of Rheumatology provides a directory of rheumatologists. http://ww2.rheumatology.org/directory/geo.asp

The American Academy of Dermatology also provides a directory of dermatologists.
http://www.aad.org/find-a-derm
Last updated: 2/4/2014

References
Other Names for this Disease
  • Acquired hyperostosis syndrome
  • Synovitis acne pustulosis hyperostosis osteitis
  • Synovitis, Acne, Pustlosis, Hyperostosis, and Osteomyelitis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.