Other Names for this Disease
- Poland anomaly
- Poland sequence
- Poland syndactyly
- Poland's syndrome
- Unilateral defect of pectoralis muscle and syndactyly of the hand
Your QuestionI am a 46 year old female who was born with Polands Syndrome. I was missing the upper ribs and the chest wall on my right side. As a result I am now facing multiple spinal problems and am looking for the correct treatment by the correct specialists. How do I go about finding spine specialists who have worked with this condition?
We have identified the following information that we hope you find helpful. If you still have questions, please contact us.
Click on the following links in order to search directories for spine specialists who may be familiar with Poland syndrome.
National Directory of Spine physicians
American Academy of Orthopaedic Surgeons
American Association of Neurological Surgeons
Plastic surgeons are the types of doctor most commonly treating Poland syndrome, due to the need for chest reconstruction. Therefore it may be worthwhile to search the database of the American Society of Plastic Surgeons.
Additionally, although they do not provide treatment for Poland syndrome, genetics professionals may be able to find appropriate referrals. The following online resources can help you find a genetics professional in your community:
- GeneTests has a searchable directory of US and international genetics and prenatal diagnosis clinics.
- The National Society of Genetic Counselors provides a searchable directory of US and international genetic counseling services.
- The American College of Medical Genetics has a searchable database of US genetics clinics.
- The University of Kansas Medical Center provides a list of US and international genetic centers, clinics, and departments.
- The American Society of Human Genetics maintains a database of its members, which includes individuals who live outside of the United States. Visit the link to obtain a list of the geneticists in your country, some of whom may be researchers that do not provide medical care.