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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Peripheral T-cell lymphoma


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Conferences



ORDR-Sponsored Conferences

  • RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
    Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
    Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.

  • Overcoming Barriers to International Clinical Trials for Rare Cancers , Friday, December 10, 2010
    Location: Bethesda, Maryland
    Description: The goals of this conference were to introduce key institutional players to the topic of international clinical trials in rare cancers and to establish an ongoing dialogue. Participants left the meeting with a set of specific priorities that need to be enacted to promote these trials. The meeting promoted consensus on the way that resources are prioritized to address rare cancers. Participants were asked to convey the content of the meeting to their constituencies and to follow up with pilot concepts.

  • Uncovering Gene-Environment Interactions in Non-Hodgkin Lymphoma (NHL) and Its Subtypes: An Interlymph Workshop, Thursday, April 15, 2010 - Friday, April 16, 2010
    Location: Natcher Conference Center, Bethesda, MD
    Description: The goals of this conference were to coordinate and conduct pooled analyses of six gene-environment interactions for non-Hodgkin lymphoma (NHL) and to ascertain potential differences by NHL subtypes. This allowed us to understand the determinants of lymphomagenesis and identify potentially common mechanisms of action for lymphomagenesis between targeted genes and environmental risk factors. Scientific collaborations achieved from this meeting were aimed at enhancing interdisciplinary research in this understudied area of research.

  • VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
    Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
    Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.