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Genetic and Rare Diseases Information Center (GARD)

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Other Names for this Disease
  • Idiopathic hypertrophic osteoarthropathy
  • PDP
  • Primary hypertrophic osteoarthropathy
  • Touraine Solente Gole syndrome
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Your Question

I was diagnosed by several doctors with different diagnoses: cancer, osteomyelitis and several other bone diseases. The last doctor gave me the diagnosis of Touraine Solente Gole Syndrome. The doctor told me that I will not die, but this disease has no treatment and that I must support the pain. I want to know if there is treatment for this disease or what could make my pain go away.

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

How might pachydermoperiostosis be treated?

Treatment for pachydermoperiostosis mainly focuses on the specific signs and symptoms present in each individual.[1] Bone and joint pain may be treated with nonsteroidal anti-inflammatory drugs (NSAIDs), corticosteroids or colchicine.[1][2] A vagotomy, a surgical procedure in which certain branches of the vagus nerve are cut, may in some instances improve joint pain and swelling.[1] Skin-related symptoms may be treated with retinoids.[2] Plastic surgery may be performed to improve facial appearance in some individuals.[1] Surgery may also be performed to treat clubbing of fingers and/or toes.[2]
Last updated: 5/9/2012