Other Names for this Disease
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
Bone Marrow Failure Disease Scientific Symposium 2012: Building a Collaborative Research Community That Saves Lives, Thursday, March 22, 2012 - Friday, March 23, 2012
Location: Hyatt Regency Bethesda, , Bethesda, MD
Description: This Symposium will bring together physicians treating these diseases and laboratory researchers studying the immunology and cell biology of bone marrow failure to discuss current areas of controversy, share recent research results, and propose recommendations for the highest priority directions for basic and clinical research needed to advance the field. The format will consist of six presentation sessions, with time at the end of each session for questions and discussions, as well as for capture of recommendations for future research. The two days of the conference will also include poster and discussion sessions and networking opportunities.
VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.
AA&MDSIF (Aplastic Anemia & Myelodysplastic Syndromes International Foundation) Second Bone Marrow Failure Disease Scientific Symposium, Thursday, March 11, 2010 - Friday, March 12, 2010
Location: Hyatt Regency Hotel, Bethesda, MD
Description: The overarching goal of the conference was to provide the National Heart, Lung, and Blood Institute (NHLBI) with specific recommendations for future laboratory and clinical research focuses, for clinical trials needed to advance the standard of care, and for the best mechanisms to continue the work of the Bone Marrow Failure Disease Consortium, a successful NIH-funded collaborative research group, the funding for which expired in 2009.