Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.

Diseases

Genetic and Rare Diseases Information Center (GARD)

Print friendly version

Alpha-mannosidosis type 1


Other Names for this Disease

  • Alpha mannosidase B deficiency
  • Lysosomal alpha-D-mannosidase deficiency
  • Mannosidosis, alpha B lysosomal
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Canadian Society for Mucopolysaccharide and Related Diseases Inc. (Canadian MPS Society)
    P.O. Box 30034, RPO Parkgate
    North Vancouver, BC V7H 2Y8
    Canada
    Toll-free: 800-667-1846
    Telephone: 604-924-5130
    Fax: 604-924-5131
    E-mail: info@mpssociety.ca
    Website: http://www.mpssociety.ca

  • Hide and Seek Foundation for Lysosomal Storage Disease Research
    4123 Lankershim Boulevard
    6475 East Pacific Coast Highway
    Suite 466
    Long Beach, CA 90803
    Telephone: 877-621-1122
    Fax: 818-762-2502
    E-mail: info@hideandseek.org
    Website: http://www.hideandseek.org

  • National MPS Society
    4220 NC Hwy 55, Ste.140
    Durham, NC 27713
    Toll-free: 877-MPS-1001
    Telephone: 919-806-0101
    Fax: 919-806-2055
    E-mail: info@mpssociety.org
    Website: http://www.mpssociety.org

  • Society for Mucopolysaccharide (MPS) Diseases
    MPS House Repton Place White Lion Road
    Amersham Buckinghamshire
    HP7 9LP
    United Kingdom
    Telephone: (+44) 0845 389 9901
    E-mail: mps@mpssociety.co.uk
    Website: http://www.mpssociety.co.uk

  • The International Advocates for Glycoprotein Storage Diseases (ISMRD)
    3921 Country Club Drive
    Lakewood, CA 90712
    E-mail: info@ismrd.org
    Website: http://www.ismrd.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Alpha mannosidase B deficiency
  • Lysosomal alpha-D-mannosidase deficiency
  • Mannosidosis, alpha B lysosomal
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.