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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Lymphomatoid granulomatosis


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Conferences


ORDR-Sponsored Conferences

  • Strategies to Develop Therapies for Rare Tumors: Small Numbers, but Big Opportunities , Fall 2014
    Location: NIH Natcher Conference Center, Bethesda, MD
    Description: <span style="font-size: 11pt; font-family: Times New Roman,serif;">The goals of this symposium are to increase communication and build networks between researchers working in rare tumors across NIH, and to get input from patient groups, industry, and the FDA on how to overcome the biggest hurdles in the development of therapies for rare tumors. The Rare Tumors Initiative at NCI, CCR will use this information to prioritize goals for the future and will prepare a white paper summary to help guide researchers worldwide.</span>

  • Advancing Symptom Clusters Research on Rare Cancers, Wednesday, September 10, 2014
    Location: NIH Neuroscience Building, Bethesda, MD
    Description: <p>It is intended that the in-depth, interdisciplinary dialogue of this expert working group will formulate an emerging consensus on a working definition of symptom clusters and, specific gaps and opportunities that provide a foundation for a transformative strategic blueprint to guide future symptom cluster research in rare cancers. In addition, it is anticipated that workshop proceedings will inform a funding opportunity announcement.</p>

  • The Spectrum of Caregiving and Palliative Care in Rare Diseases, August 2014
    Location: NIH Natcher Conference Center, Bethesda, MD
    Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.

  • RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
    Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
    Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.

  • Uncovering Gene-Environment Interactions in Non-Hodgkin Lymphoma (NHL) and Its Subtypes: An Interlymph Workshop, Thursday, April 15, 2010 - Friday, April 16, 2010
    Location: Natcher Conference Center, Bethesda, MD
    Description: The goals of this conference were to coordinate and conduct pooled analyses of six gene-environment interactions for non-Hodgkin lymphoma (NHL) and to ascertain potential differences by NHL subtypes. This allowed us to understand the determinants of lymphomagenesis and identify potentially common mechanisms of action for lymphomagenesis between targeted genes and environmental risk factors. Scientific collaborations achieved from this meeting were aimed at enhancing interdisciplinary research in this understudied area of research.

  • VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
    Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
    Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.

See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.