Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.

Diseases

Genetic and Rare Diseases Information Center (GARD)

Print friendly version

Limb-girdle muscular dystrophy


Other Names for this Disease
  • LGMD- autosomal recessive
  • Limb girdle muscular dystrophy
  • Limb-girdle muscular dystrophy autosomal recessive
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations


Organizations Supporting this Disease

  • Muscular Dystrophy Family Foundation
    2330 North Meridien Street
    Indianapolis, IN 46208
    Toll-free: 800-544-1213
    Telephone: 317-923-6333
    Fax: 317-923-6334
    E-mail: mdff@mdff.org
    Website: http://www.mdff.org

  • Parent Project Muscular Dystrophy
    1012 North University Boulevard
    Middletown, OH 45042
    Toll-free: 800-714-5437
    Telephone: 513-424-0696
    Fax: 513-425-9907
    E-mail: pat@parentprojectmd.org
    Website: http://www.parentprojectmd.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support