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Genetic and Rare Diseases Information Center (GARD)

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Langerhans cell histiocytosis

Other Names for this Disease
  • Eosinophilic granuloma (formerly)
  • Hand-Schüller-Christian syndrome (formerly)
  • Histiocytosis X
  • LCH
  • Letterer-Siwe disease (formerly)
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Your Questions Answered

4 question(s) from the public on this disease have been answered. Submit a new question.
  • I'm an adult with LCH (non-pulmonary). What is a successful treatment regiment for adult Langerhans? I have read that it's different than it is for children since adults don't tolerate the same regiment well if they need chemo, but there's misinformation out there on the internet, and I may be facing this treatment in a few weeks. I would like to make an informed choice. Click here for answer

  • My child had surgery for Langerhans cell histiocytosis. I believe that I was once told that this condition is not genetic. Is this true? Click here for answer

  • My toddler daughter has been diagnosed with Langerhans cell histiocytosis. I'd like to learn as much as possible about the condition. Click here for answer

  • My daughter was diagnosed with Langerhans cell histiocytosis. How is this condition treated? Click here for answer