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Other Names for this Disease
- Huntington's chorea
- Huntington's disease
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Clinical Trials & Research for this Disease
- ClinicalTrials.gov lists trials that are studying or have studied Huntington disease. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- The Huntington Study Group (HSG) is a non-profit group of clinical investigators from medical centers in the United States, Canada, Europe, Australia, New Zealand and South America, experienced in the care of Huntington patients and dedicated to clinical research of Huntington disease (HD). Click on the link to learn more about research trials that are currently underway.
- The National Research Roster for Huntington Disease Patients and Families (hdRoster) was established in 1979 at Indiana University. Funded by the National Institute of Neurological Disorders and Stroke, a branch of the National Institutes of Health, the Roster computerizes the names of families, including information about the history of HD in the family (family trees) and other related data. This information identifies HD patients and families who are interested in participating in research projects.
- ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Research Resources (NCRR), a center of the National Institutes of Health (NIH), the primary Federal agency for conducting and supporting medical research. Click on the link to learn more about ResearchMatch.
General Clinical Trials & Research
- NIH Clinical Trials and You is a website developed by the National Institutes of Health (NIH) to help people learn more about clinical trials, why they matter, and how to participate.