Pantothenate kinase-associated neurodegeneration
Other Names for this Disease
- Hallervorden-Spatz disease
- Neuroaxonal dystrophy, late infantile
- Neurodegeneration with brain iron accumulation
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I am looking for treatment information for PKAN. My brother was diagnosed with it a little over a year ago. It started about age 3 with all the classic signs. He now is in very bad shape. I am looking for any help. He may start a clinical trial of deferiprone treatment if approved by the FDA. Click here for answer