Canadian Marfan Association
Centre Plaza Postal Outlet
128 Queen Street South
P.O. Box 42257
Mississauga Ontario L5M 4Z0
Toll-free: 866-722-1722 Telephone: 905-826-3223 Fax: 905-826-2125 E-mail: firstname.lastname@example.org Website: http://www.marfan.ca
National Marfan Foundation
22 Manhasset Avenue
Toll-free: 800-8-MARFAN (800-862-7326) Telephone: 516-883-8712 Fax: 516-883-8040 E-mail: email@example.com Website: http://www.marfan.org
Scoliosis Research Society
555 East Wells Street, Suite 1100
Telephone: 414-289-9107 Fax: 414-276-3349 E-mail: firstname.lastname@example.org Website: http://www.srs.org
Social Networking Websites
DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.