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Other Names for this Disease
- Ceroid lipofuscinosis neuronal 3
- Juvenile neuronal ceroid lipofuscinosis
- Neuronal ceroid lipofuscinosis 3
- Spielmeyer Sjogren disease
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- GeneReviews provides current, expert-authored, peer-reviewed, full-text articles describing the application of genetic testing to the diagnosis, management, and genetic counseling of patients with specific inherited conditions. Click on the link to view the article on this topic.
Clinical Trials & Research for this Disease
- ClinicalTrials.gov lists trials that are studying or have studied Batten disease. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- The National Institute of Neurological Disorders and Stroke (NINDS) funds two national human brain banks. These banks provide researchers worldwide with tissue from patients with neurological and psychiatric disorders. Both banks need brain tissue from Batten disease patients to enable scientists to study the disease more closely.
The Human Brain and Spinal Fluid Resource Center
Neurology Research (127A)
W. Los Angeles Healthcare Center
11301 Wilshire Blvd. Bldg. 212
Los Angeles, CA 90073
24-hour pager: 310-636-5199
Web site: http://www.loni.ucla.edu/uclabrainbank/
Francine M. Benes, M.D., Ph.D.
Harvard Brain Tissue Resource Center
115 Mill Street
Belmont, Massachusetts 02478
Toll-free: 1-800-BRAIN-BANK (800-272-4622)
Web site: http://www.brainbank.mclean.org
- The following organizations provide researchers with nervous system tissues from patients with neurological disorders.
National Disease Research Interchange (NDRI)
8 Penn Center
Philadelphia, PA 19103
Toll-free: 1-800-222-NDRI (800-222-6374)
Fax: 215-557-7154 or 215-557-8187
Contact Us Web page: http://www.ndriresource.org/Contact_Us/19/
Web site: http://www.ndriresource.org/
Brain Endowment Bank
University of Miami
Leonard M. Miller School of Medicine
Department of Neurology
1501 NW 9th Avenue
Room 4013 (D4-5)
Miami, Florida 33101
Toll-free: 1-800-UM-BRAIN (800-86-27246)
Contact Us Web page: http://brainbank.med.miami.edu/x54.xml
Web site: http://brainbank.med.miami.edu/x7.xml