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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Alpers syndrome


Other Names for this Disease

  • Alpers diffuse degeneration of cerebral gray matter with hepatic cirrhosis
  • Alpers disease
  • Alpers progressive infantile poliodystrophy
  • Alpers-Huttenlocher syndrome
  • Diffuse cerebral degeneration in infancy
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Epilepsy Foundation
    8301 Professional Place
    East Landover, MD 20785-2238
    Toll-free: 800-EFA-1000 (800-332-1000)
    Telephone: 301-459-3700
    Fax: 301-577-4941
    E-mail: info@efa.org
    Website: http://www.epilepsyfoundation.org/

  • MitoAction
    PO Box 51474
    Boston, MA 02205
    Toll-free: 888-648-6228
    Telephone: 1-888-MITO-411 (648-6411) for support line
    E-mail: info@mitoaction.org
    Website: http://www.mitoaction.org

  • United Mitochondrial Disease Foundation
    8085 Saltsburg Road, Suite 201
    Pittsburgh, PA 15239
    Toll-free: 888-317-8633
    Telephone: 412-793-8077
    Fax: 412-793-6477
    E-mail: info@umdf.org
    Website: http://www.umdf.org

Social Networking Websites

  • DNAandU.org is a Web site and blogĀ that collectsĀ firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Alpers diffuse degeneration of cerebral gray matter with hepatic cirrhosis
  • Alpers disease
  • Alpers progressive infantile poliodystrophy
  • Alpers-Huttenlocher syndrome
  • Diffuse cerebral degeneration in infancy
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.