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Genetic and Rare Diseases Information Center (GARD)

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Aicardi-Goutieres syndrome


Other Names for this Disease

  • AGS
  • Aicardi Goutieres syndrome
  • Encephalopathy, familial infantile, with calcification of basal ganglia and chronic cerebrospinal fluid lymphocytosis
  • Pseudo-torch syndrome
  • Pseudotoxoplasmosis syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

Have there been any documented beneficial results with manual treatments, such as integrated neuromuscular re-education, for Aicardi-Goutieres syndrome?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

Are there alternative treatment methods, such as integrated neuromuscular re-education, available for Aicardi-Gourieres syndrome?

There is very limited information available on the use of manual treatments for Aicardi-Goutieres syndrome. After an extensive review of the information available to us, we were unable to find any information on the use of integrated neuromuscular re-education in Aicardi-Goutieres syndrome. However, chest physiotherapy can be used to treat respiratory issues.[1] Chest physiotherapy involves drumming on the back and chest with cupped hands to loosen secretions.  This form of therapy has been shown to improve outcomes of respiratory complications.  In addition, stretching, poitioning and range-of-motion excercises may be beneficial to muscles and the spine.[2]

GeneReviews provides general information on the management of Aicardi-Goutieres syndrome

The National Center for Complementary and Alternative Medicine (NCCAM).  The NCCAM, part of the National Institutes of Health (NIH), provides information about complementary and alternative healing practices.   We recommend you contact them directly to learn more.

National Center for Complementary and Alternative Medicine Clearinghouse (NCCAM)
P.O. Box 7923
Gaithersburg, MD 20898
Toll-free: 888-644-6226
International: 301-519-3153
TTY: 866-464-3615
Fax: 866-464-3616
E-mail: info@nccam.nih.gov
Web site: http://nccam.nih.gov

Last updated: 6/8/2011

References
Other Names for this Disease
  • AGS
  • Aicardi Goutieres syndrome
  • Encephalopathy, familial infantile, with calcification of basal ganglia and chronic cerebrospinal fluid lymphocytosis
  • Pseudo-torch syndrome
  • Pseudotoxoplasmosis syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.