Adams Oliver syndrome
Other Names for this Disease
- Aplasia cutis congenita with terminal transverse defects of limbs, and skull defects
- Congenital scalp defects with distal limb anomalies
- Forrest H Adams syndrome
- Limb scalp and skull defects
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On this page
- Orphanet lists clinical trials, research studies, and patient registries enrolling people with this condition. Click on Orphanet to view the list.
- The AOSupport Registry was created to encourage research into the diagnosis and treatment of Adams Oliver syndrome. Click on AOSupport Registry to learn more and to register yourself or your loved one.
- ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Research Resources (NCRR), a center of the National Institutes of Health (NIH), the primary Federal agency for conducting and supporting medical research. Click on the link to learn more about ResearchMatch.
- NIH Clinical Trials and You is a website developed by the National Institutes of Health (NIH) to help people learn more about clinical trials, why they matter, and how to participate.