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Genetic and Rare Diseases Information Center (GARD)

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Retinitis pigmentosa

Other Names for this Disease
  • Rod-Cone Dystrophy
  • RP
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Your Questions Answered

5 question(s) from the public on this disease have been answered. Submit a new question.
  • My sister has retinitis pigmentosa. Can this condition be cured? Click here for answer

  • How can one anticipate the progression of their disorder, as in how bad their condition is? How does one know what type of retinitis pigmentosa they have if their condition is inherited, developed in childhood, and their parents don't have it? Click here for answer

  • I have peripheral vision loss, but not night blindness. After a retinal exam, my doctor told me that I have retinitis pigmentosa (RP). Is X-linked congenital stationary night blindness (XLCSNB) a form of RP or a completely different disease? I read that in the incomplete form of XLCSNB, the damage is stationary and the patient may not have night blindness. Is it possible that I am in this group?  Click here for answer

  • How is gene therapy being used to treat conditions like retinitis pigmentosa? Does gene therapy involve transplanting healthy human eye cells in the diseased retina? How can I learn more about clinical trials and research studies investigating new treatments for retinitis pigmentosa? Click here for answer

  • Where can I find information on National Institutes of Health (NIH) funding for rare diseases, specifically retinitis pigmentosa? I am also looking for information on the cost of having this condition and current research projects. How many people have retinitis pigmentosa in the United States? Click here for answer