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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Prader-Willi syndrome


Other Names for this Disease
  • Obesity, muscular hypotonia, mental retardation, short stature, hypogonadotropic hypogonadism, and small hands and feet
  • Prader Labhart Willi syndrome
  • PWS
  • Willi-Prader syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations


Organizations Supporting this Disease

  • Foundation for Prader-Willi Research
    5455 Wilshire Blvd, Suite 2020
    Los Angeles, CA 90036
    Toll-free: 888-322-5487
    Telephone: 760-536-3027
    Fax: 888-559-4105
    E-mail: http://www.fpwr.org/contact
    Website: http://www.fpwr.org/

  • International Prader-Willi Syndrome Organisation
    c/o BIRD Europe Foundation Onlus
    Via Bartolomeo Bizio 1
    Costozza 1-36023
    Italy
    Telephone: 39 0444 555557
    Fax: 39 0444 555557
    E-mail: g.fornas@alice.it
    Website: http://www.ipwso.org

  • Prader-Willi Syndrome Association
    8588 Potter Park Drive, Suite 500
    Sarasota, FL 34238
    Toll-free: 800-926-4797
    Telephone: 941-312-0400
    Fax: 941-312-0142
    E-mail: national@pwsausa.org
    Website: http://www.pwsausa.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support