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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Russell-Silver syndrome


Other Names for this Disease

  • Silver-Russell dwarfism
  • Silver-Russell syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Little People of America, Inc.
    250 El Camino Real, Suite 201
    Tustin, CA 92780
    Toll-free: 888-572-2001
    Telephone: 714-368-3689
    Fax: 714-368-3367
    E-mail: info@lpaonline.org
    Website: http://www.lpaonline.org/

  • Silver-Russell Support Group
    c/o Child Growth Foundation
    2 Mayfield Avenue
    Chiswick London
    W4 1PW
    United Kingdom
    Telephone: 020 8995 0257; 020 8994 7625
    Fax: 020 8995 9075

  • The MAGIC Foundation
    6645 West North Avenue
    Oak Park, IL 60302
    Toll-free: 800-362-4423
    Telephone: 708-383-0808
    Fax: 708-383-0899
    E-mail: info@magicfoundation.org
    Website: http://www.magicfoundation.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.
  • RSS-Support yahoo group, an online discussion group for adults with family members or other loved ones with Russell-Silver syndrome.
  • RSS-People yahoo group, an online discussion group for children and adults with Russell-Silver syndrome.
  • Growth Hormone Deficiency group is an International Rare Disease Support Network (IRDSN) eGroup hosted through yahoo group open for anyone interested in making friends, sharing information and providing support for persons affected by 'Growth Hormone Deficiency.
  • MAGIC List is an online group sponsored by MAGIC Foundation and hosted by yahoo group. It exists to support, encourage, and advice on the issues associated with raising children on Growth Hormone Therapy.

Organizations Providing General Support

Other Names for this Disease
  • Silver-Russell dwarfism
  • Silver-Russell syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.