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Shprintzen-Goldberg craniosynostosis syndrome
Other Names for this Disease
- Craniosynostosis with arachnodactyly and abdominal hernias
- Marfanoid craniosynostosis syndrome
- Marfanoid disorder with craniosynostosis type 1
- Marfanoid-craniosynostosis syndrome
- Shprintzen-Goldberg marfanoid syndrome
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Organizations Supporting this Disease
PO Box 5153
Stockton, CA 95205-0153
Social Networking Websites
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.