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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Primary ciliary dyskinesia


Other Names for this Disease

  • Ciliary dyskinesia primary
  • ICS
  • Immotile cilia syndrome
  • Polynesian bronchiectasis
  • Polynesian bronchiectasis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

How can I learn about research involving primary ciliary dyskinesia and Kartagener syndrome?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

How can I learn about research involving primary ciliary dyskinesia and Kartagener syndrome?

The Genetic Disorders Of Mucociliary Clearance Consortium is a network of four U.S. centers that are collaborating in the diagnostic testing, genetic studies, and clinical trials in patients with impairments in mucociliary clearance, focusing on primary ciliary dyskinesia, cystic fibrosis, and pseudohypoaldosteronism. Ultimately, this group hopes to better understand the cause of these diseases, to improve or expand diagnostic testing, and to develop new treatments. Visit the Web site to learn more about current research studies.

Visit our Clinical Trials & Research tab for a list of additional resources where you may find research studies and clinical trials for primary ciliary dyskinesia and Kartagener syndrome.

You can also contact the Patient Recruitment and Public Liaison (PRPL) Office at the National Institutes of Health (NIH). We recommend calling toll-free 1-800-411-1222 to speak with a specialist who can help you determine if you are eligible for any clinical trials at the NIH.

If you are interested in enrolling in a clinical trial, ClinicalTrials.gov provides helpful information on understanding clinical trials. The Office of Rare Diseases Research (ORDR) lists resources that assist with patient travel and lodging.
Last updated: 4/28/2011
Other Names for this Disease
  • Ciliary dyskinesia primary
  • ICS
  • Immotile cilia syndrome
  • Polynesian bronchiectasis
  • Polynesian bronchiectasis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.