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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Amniotic band syndrome


Other Names for this Disease

  • Amniotic bands sequence
  • Congenital constricting bands
  • Familial amniotic bands
  • Streeter anomaly
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

What is the incidence of amniotic band syndrome? Where can I find information about clinical trials?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What is the incidence of amniotic band syndrome?

The estimated incidence of amniotic band syndrome varies due to the difficulty of accurately diagnosing this condition. The incidence is often stated as approximately 1 in 10,000 to 15,000 people.[1] A 1988 study from Atlanta cites the incidence as 1.16 cases per 10,000 population.[2] The international incidence appears to be similar to that of the United States.[1]
Last updated: 3/23/2010

How can I learn about clinical trials involving amniotic band syndrome?

Visit our section on Clinical Trials & Research for resources where you may find research studies and clinical trials on amniotic band syndrome.

The National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. No studies involving amniotic band syndrome are listed at this time, but check this site often for updates. To search for a study, use "amniotic band" as your search term.

You can also contact the Patient Recruitment and Public Liaison (PRPL) Office at the National Institutes of Health (NIH). We recommend calling toll-free 1-800-411-1222 to speak with a specialist, who can help you determine if you are eligible for any clinical trials. If you are located outside the United States and would like to be contacted via telephone, you will need to provide your telephone number, including area code and international dialing prefix.

If you are interested in enrolling in a clinical trial, you can find helpful general information on clinical trials at the following ClinicalTrials.gov Web page.
http://clinicaltrials.gov/ct2/info/understand

A tutorial about clinical trials that can also help answer your questions can be found at the following link from the National Library of Medicine:
http://www.nlm.nih.gov/medlineplus/tutorials/cancerclinicaltrials/htm/lesson.htm

Resources on many charitable or special-fare flights to research and treatment sites and low-cost hospitality accommodations for outpatients and family members, as well as ambulance services, are listed on the Web site of the Office of Rare Diseases Research (ORDR), part of the National Institutes of Health.
http://rarediseases.info.nih.gov/Resources.aspx?PageID=8

Last updated: 3/23/2010

References
Other Names for this Disease
  • Amniotic bands sequence
  • Congenital constricting bands
  • Familial amniotic bands
  • Streeter anomaly
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.