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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Leukodystrophy, hypomyelinating 3


Other Names for this Disease
  • Perinatal Sudanophilic leukodystrophy
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Organizations


Organizations Supporting this Disease

  • Association Européenne contre les Leucodystrophies (ELA)
    European Leukodystrophy Association
    53 cours Léopold
    BP 267 - 54005
    France
    Telephone: 333 83 30 93 34
    Fax: 333 83 30 00 68
    E-mail: ela@ela-asso.com
    Website: http://www.ela-asso.com

  • Australian Leukodystrophy Support Group
    10 Mitchell Street
    Mentone Victoria 3194
    Australia
    Telephone: +61 3 9584 7070
    E-mail: mail@alds.org.au
    Website: http://www.alds.org.au/

  • Myelin Project
    Candace Root, Executive Director
    1400 Wallace Blvd, Suite 258
    Amarillo, TX 79106
    Telephone: 800-869-3546; 806 356 4693
    Fax: 806 356 4694
    E-mail: candace.root@myelin.org
    Website: http://www.myelin.org

  • United Leukodystrophy Foundation (ULF)
    2304 Highland Drive
    Sycamore, IL 60178
    Toll-free: 800-728-5483
    Telephone: 815-895-3211
    Fax: 815-895-2432
    E-mail: office@ulf.org
    Website: http://www.ulf.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support