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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Pachyonychia congenita type 2


Other Names for this Disease
  • Jackson-Lawler syndrome
  • Pachyonychia congenita Jackson Lawler type
  • PC2
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Conferences



ORDR-Sponsored Conferences

  • Pediatric Dermatology Research Alliance (PeDRA) Annual Conference, Friday, October 18, 2013 - Sunday, October 20, 2013
    Location: Westin O’Hare Hotel , Rosemont, IL
    Description: The goals of the PEDRA annual meetings are to provide an educational platform that will enhance the research skills of PeDRA investigators and establish a forum for the critical review of research proposals developed by PeDRA disease-focused groups and to create a bridge between basic scientists and clinicians to enhance opportunities for research. Each group will identify and prioritize the clinical needs and therapeutic opportunities.

  • 2013 International Pachyonychia Congenita Consortium (IPCC) Symposium, Thursday, February 14, 2013 - Sunday, February 17, 2013
    Location: Park City, UT
    Description: By bringing experts from around the world together, the 2013 symposium will create a powerful environment to formulate a clear path forward for cooperative clinical studies based on completed research or new research designed with clinical endpoints in mind.

  • RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
    Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
    Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.

  • VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
    Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
    Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.

  • IPCC 2009 Symposium: Planning for Effective Delivery of Nucleic Acids to Skin, Tuesday, May 05, 2009 - Wednesday, May 06, 2009
    Location: Montreal, Canada
    Description: Conference organizers hoped that the 2009 IPCC scientific meeting would result in an effective plan for more patient-friendly and effective delivery to skin. The results of the symposium will be immediately applied to clinical trials and studies with patients.