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Diseases

Genetic and Rare Diseases Information Center (GARD)

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X-linked congenital stationary night blindness


Other Names for this Disease
  • Congenital stationary night blindness with myopia
  • Hemeralopia-myopia
  • Myopia-night blindness
  • X-linked CSNB
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Organizations


Organizations Supporting this Disease

  • American Foundation for the Blind
    2 Penn Plaza, Suite 1102
    New York, NY 10121
    Toll-free: 800-232-5463
    Telephone: 212-502-7600
    Fax: 888-545-8331
    E-mail: afbinfo@afb.net
    Website: http://www.afb.org/

  • Foundation Fighting Blindness
    7168 Columbia Gateway Drive, Suite 100
    Columbia, MD 21046
    Toll-free: 800-683-5555
    Telephone: 410-423-0600 (local)
    TTY: 800-683-5551
    E-mail: info@fightblindness.org
    Website: http://www.blindness.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support