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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Ceroid lipofuscinosis neuronal 2


Other Names for this Disease

  • CLN2
  • Jansky-Bielschowsky disease
  • Neuronal ceroid lipofuscinosis 2
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Batten Disease Support and Research Association (BDSRA)
    166 Humphries Drive
    Reynoldsburg, OH 43068
    Toll-free: 800-448-4570
    Telephone: 740-927-4298
    Fax: 740-927-7683
    E-mail: bdsra1@bdsra.org
    Website: http://www.bdsra.org/

  • Hide and Seek Foundation for Lysosomal Storage Disease Research
    4123 Lankershim Boulevard
    6475 East Pacific Coast Highway
    Suite 466
    Long Beach, CA 90803
    Telephone: 877-621-1122
    Fax: 818-762-2502
    E-mail: info@hideandseek.org
    Website: http://www.hideandseek.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • CLN2
  • Jansky-Bielschowsky disease
  • Neuronal ceroid lipofuscinosis 2
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.