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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Ichthyosis congenita biliary atresia


Other Names for this Disease

  • Congenital ichthyosis with biliary atresia
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • The Childhood Liver Disease Research and Education Network (ChiLDREN) is a team of doctors, nurses, research coordinators, and research labs throughout the U.S., working together to improve the lives of people with rare liver diseases through research. Current studies are enrolling people with¬†Alagille syndrome, alpha one-antitrypsin deficiency,¬†bile acid synthesis defects, biliary atresia, cystic fibrosis liver disease, idiopathic neonatal hepatitis,¬†mitochondrial hepatopathies, and progressive familial intrahepatic cholestasis. Click on the link above to learn more.

    Visit the following link to find the participating research center nearest you.
    http://childrennetwork.org/centers.html

Patient Registry

  • ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Research Resources (NCRR), a center of the National Institutes of Health (NIH), the primary Federal agency for conducting and supporting medical research. Click on the link to learn more about ResearchMatch.

General Clinical Trials & Research

  • NIH Clinical Trials and You is a website developed by the National Institutes of Health (NIH) to help people learn more about clinical trials, why they matter, and how to participate.
Other Names for this Disease
  • Congenital ichthyosis with biliary atresia
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.