Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.


Genetic and Rare Diseases Information Center (GARD)

Print friendly version

IBIDS syndrome

Other Names for this Disease
  • Ichtyosis, Brittle hair, Intellectual impairment, Decreased fertility, and Short stature
  • Tay syndrome
  • Trichothiodystrophy with congenital ichtyosis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.


Newline Maker

What treatment is available for Tay syndrome?

Treatments for Tay syndrome are symptomatic. There is no cure for ichthyosis, only treatments to help manage symptoms. The main treatment for ichthyosis is to hydrate (moisturize) the skin, hold in the moisture, and keep scale thickness to a minimum.[1]
Last updated: 7/30/2013

  1. Foundation for Ichthyosis & Related Skin Types. Accessed 4/15/2008.

Clinical Trials & Research for this Disease

  • The U.S. National Institutes of Health, through the National Library of Medicine, developed to provide patients, family members, and members of the public with current information on clinical research studies. Currently, 1 clinical trial is identified as enrolling individuals with trichothiodystrophy and 12 studies are enrolling individuals with ichthyosis. To find these trials, click on the link below and use "trichothiodystrophy" or “ichthyosis” as your search term. There are no studies presently on Tay syndrome specifically.  Use the study’s contact information to learn more. Check this site often for regular updates.  The home page is
  • lists trials that are studying or have studied IBIDS syndrome. Click on the link to go to to read descriptions of these studies.
  • Foundation for Ichthyosis and Related Skin Types has funded ichthyosis-related research through its Research Grant Program.