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Diseases

Genetic and Rare Diseases Information Center (GARD)

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IBIDS syndrome


Other Names for this Disease
  • Ichtyosis, Brittle hair, Intellectual impairment, Decreased fertility, and Short stature
  • Tay syndrome
  • Trichothiodystrophy with congenital ichtyosis
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Treatment


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What treatment is available for Tay syndrome?

Treatments for Tay syndrome are symptomatic. There is no cure for ichthyosis, only treatments to help manage symptoms. The main treatment for ichthyosis is to hydrate (moisturize) the skin, hold in the moisture, and keep scale thickness to a minimum.[1]
Last updated: 7/30/2013

References
  1. Foundation for Ichthyosis & Related Skin Types. http://www.firstskinfoundation.org/content.cfm/category_id/0/page_id/830. Accessed 4/15/2008.


Clinical Trials & Research for this Disease

  • The U.S. National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. Currently, 1 clinical trial is identified as enrolling individuals with trichothiodystrophy and 12 studies are enrolling individuals with ichthyosis. To find these trials, click on the link below and use "trichothiodystrophy" or “ichthyosis” as your search term. There are no studies presently on Tay syndrome specifically.  Use the study’s contact information to learn more. Check this site often for regular updates.  The ClinicalTrials.gov home page is http://www.clinicaltrials.gov.
  • ClinicalTrials.gov lists trials that are studying or have studied IBIDS syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • Foundation for Ichthyosis and Related Skin Types has funded ichthyosis-related research through its Research Grant Program.