Spasticity multiple exostoses
Other Names for this Disease
- Hamann Zanki schimrigk syndrome
- Multiple exostoses with spastic tetraparesis
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.
The Third Multiple Hereditary Exostoses (MHE) Research Conference, Thursday, October 29, 2009 - Sunday, November 01, 2009
Location: Four Points, Sheraton Boston Logan Airport, Boston, MA
Description: This goals of this conference were to promote the exchange of the most current information regarding MHE and the collaboration and synergy among laboratories studying this disease. These goals were accomplished by bringing together world experts in the fields of orthopedics, human genetics, developmental biology, glycobiology, and related human bone diseases and providing them with a highly focused forum to cultivate new ideas and cross-discipline collaborations.